47 Times around the Sun: Happy Thoughts from My Life with and without Parkinson's!

It's official! This year is the Jack Morris birthday! That means that on Sunday, I will have taken 47 trips around the sun. So rather than waste time with that which causes me many anxious moments, I focus on my happy day of the year, which is always celebrated in honor of a baseball player who wore the number (in this case, a Hall of Famer who out-dueled John Smoltz in a memorable Game 7 of the 1991 World Series).

Here are 47 happy thoughts for my happy day.

1. Fellow Parkies and Parkinson's Warriors... you rock!

2. The wisdom to know that faith, philosophy, and beliefs / outlook aren't based on the horrific misdeeds of other humans who "claim" to be a part of them (thus making me want to abandon my faith altogether), but rather in knowing that they exist in understanding spiritual / religious ideas as a greater concept by a greater being. That said, people who use their "faith" for the kind of evil I'm referencing have a special Hell awaiting them. Methinks their meeting will be "problematic."

3. The Throne Room on the Standing Stone Trail in Pennsylvania - I'll be there tomorrow.

4. Spruce Knob on the Mid-State Trail. I'll be there on Sunday, sitting in the cat bird's seat / concealed bird watching area.

5. Being in nature is a good thing. Between the trees means letting my worries drift off and my belly melt off!

6. Vistas like Butler Knob (I'll be there Saturday) inspire with such infinite panoramas.

6. Trying to sell my wife on camping at Butler Shelter on the Standing Stone Trail.

7. Where are my friends the bears?

8. Granted, I'd rather see one alive, but my wife might have words about that.

9. Memories of that time I saw the bear cubs scurrying down the Batpole near Priceless Point on the Standing Stone Trail!

10. Sitting fireside this weekend with my wife while we cabin camp at Raystown Lake!

11. Being mellow and reading by the water's edge at Raystown tomorrow.

12. Magic fire colors... fun! fun! fun!

13. The volcanic planet of Mustfar and the days when Star Wars meant something.

14. Feeling like I'm owed a real-life rattlesnake sighting this weekend... from a safe distance

15. Family and love are a good thing!

16. Memories of the Muir Woods in California.

17. Memories of the coolest city in America - New Orleans.

18. Dreaming about going back to New Orleans!

19. Memories of Cancun, Mexico!

20. Dreaming about Rome.

21. Dreaming about seeing the Great Gallery.

22. Watching travel videos of Greece with my wife since she's dreaming about them.

22. Marketing my books for a greater audience!

23. Dreaming about seeing the Faroe Islands.

24. Writing places into my story (like the Faroes) because I want to see them. Yes, it's a poor substitute, but it works for now.

25. This island castle (Loreto) is too cool (and it's in Italy).

26. My nephew Dylan, who is obsessed with gators, snakes, and lizards.

27. Getting to see the Hunchback of Notre Dame this year. And no, it's not about an Indiana college.

28. Blue ube and raspberry ice cream from Fox Meadow's Creamery.

 29. Friends of the family who look out for us (my mom's friend Linda made this prayer shawl for me).

30. Playing with the puppies at the mall.

31. My wife who is all about home repair and refurbishing!

32. Getting a really cool poster made from my book's cover.

33. My attempt at inspiration via bulletin board at work.

34. Inspiration is a good thing.

35. Laughing at mindless comedies is a good thing (Happytime Murders).

36. Music to rock out to (Elf Power - Nothing's Going to Happen)

37. Pearl Jam's live CDs to download.

38. 9 years of marriage and many more to come.

39. First days of school... even if I won't be teaching this year.

40. Free breakfast at work day.

41. A wife who can make anything fit in her car.

42. Libraries for books, CDs, DVDs, and so much else.

43. Michael J. Fox and Foundation for everything you did, do, will do.

44. Health Union's Parkinson's division to post my writing.

45. The fact I don't wear a mustache anymore (that ended soon after this age 20 photo).

46. The fact that, at some point, Beyonce's career and ruining of Jay's music has to come to an end. Seeing as her last good song came out in 2007....

47. Friends like you for reading my writing until the end and who follow me on Facebook, Google, and all else (especially in real life - gracias!)!

Hiking Lessons for Mindsets and Feet: Having the Right Equipment is Everything (Especially for Mild Dystonia, Parkinson's, and Hyperhidrosis)!!

            In August of 2013, I had this grand dream. After getting off my chubby butt for the better part of 4 months, I felt that I could do a 5-6 day trek (with backpack) of the entire Standing Stone Trail (under 75 miles or so at the time if you include the distance from parking lot to the sign). I learned many things on the 20 miles of the journey I fought my way through over the 2 days I spent attempting the trail. Most of them were in line with, "Don't think; it can only hurt the ball club." Others were along the line of "rock hiking is slower and tougher than regular hiking."

1)      For me, there was no reward for starting and not finishing a task that isn’t accomplishable. Sure, I went out and experienced a part of it, while learning what not to do next time (a lot of what I did), but that's it. If you're doing something like I did, you know that we get our pictures and memories of what we saw, but if the goal is the finish line, we lost if we don't make it, and if we only go 1/3 of the way, we lost big. Thus, it’s important to have realistic goals and redefine success as pleasure and opening our minds to the flow of losing ourselves in the moment of productive accomplishment. Mihaly Csikszentmihalyi and his take on flow / optimal experience would be proud of us if we could find something we enjoy that much that we can make time vanish while creating / achieving (as long as it's not video game victories).

2)      “Getting to the top is optional, but getting down is mandatory (Ed Viesturs).” From a book that is entitled No Shortcuts to the Top, I should have been learning that a solid overnight back and forth would have been better to start (and at this point in my life, too), but I was electing to go all or nothing, so yeah. Not close and no cigar. I won’t say I’ve given up on over-nighters, but I’d just prefer to hike in and out to shelters instead. Now that I'm diagnosed with Parkinson's, life has changed BIG TIME. I’ve learned I’m more about the experience of seeing neat things than hauling a backpack day after day without a shower or without fresh cold water. As a Parkinson’s person with hyperhidrosis (I wrote about that HERE), I absorb and sweat out water quickly. Having almost 200 ounces of water on a sunny summer day doing 23 miles at Blue Marsh is about half of what I really want for something like that (I also want Clif Shots and gummy blocks - another of my favorite things I wrote about HERE and in its concluding part HERE. This is when I learned how they (and companions) could get me back from Arizona's Wave in 1 piece).

3)     On that note, I learned that there’s no reward for getting seriously injured or killed in some remote wilderness. Emergency rescues cost money. Hospital prices can be brutal, even with insurance (and sometimes, insurance won't cover it). The key is to train extensively and push ourselves just beyond our limits, not to 5 times our limits. Besides, we have people that love and need us. Remember, don't do stupid stuff or s**t.

4)     Always have an emergency way out. Companions for hikes are good, too. I went solo, which was pretty much my only option because I didn’t know anyone to go with. I had met and been influenced by one thru-hiker at the time (Lakeland, who is pretty much one of the premier long-distance elite hikers out there. At the time, he had accomplished the 5,500 Eastern Continental Trail during a year-long hike that also encompassed the Appalachian Trail), and the hike I was going to be on wasn’t going to be his type of hike. Hence, I did mine as a solo journey. Day 2, I woke up with blisters. Ten hours later, I was desperately trying to call my wife from an area of zero cell reception. I finally got in touch with her, but to put it in simplest terms, it wasn’t easy for her to find the unmarked dirt road that I was hiking to (and she was driving a Mini!). Let’s just say, at the end of the day, it’s nice to have someone who loves us enough to keep searching after driving 2 hours to rescue us from dehydration, exhaustion, and blisters. It's even nicer when said person doesn't say, "I told you so."

5)      Don’t carry more weight than you have to. I did. As the character Katz from Bill Bryson’s A Walk in the Woods learned, people will hate your guts if you throw excess weight into the forest. Food weight doesn’t go down fast enough to make it easier to ascend big mountains. Water weight also adds up for us hyperhidrosis types (he says while growling at the ultra-light types!). It doesn’t need to be compounded with lots of extra clothes. It also needs to be replenished quickly. Conserving water isn't smart for a hyperhidrosis hiker.

6)      Having the right equipment is everything! For instance, when the trek was over, I replaced my walking stick with Black Diamond trekking poles. And yes, like Oprah would say, “These are one of my favorite things.” As Lakeland said, they put us in four-wheel drive. It’s true; they do. They also help my Parkinson’s balance and my dystonia left foot as I ascend mountains and traverse boulder fields. Having them and my other essentials for all season (bear mace, Microspikes, and an ice ax) make a hell of a difference in being able to make it through. Someday, I'll be using mine as a "cane."

Prior to the trip, I had bought an REI tent, backpack, sleeping bag, ground cover, and other little supplies to take my Camelbak daypack (another one of my favorite things) and turn it into an overnight pack. I bought a ton of Cliff Bars (another of my favorite things) and dried food since I had no stove to cook with. And yes, they added up in weight. Knowing what I do about the need to stay hydrated on a pretty much dry trail, I'd rather see the trail over spread out days instead of a week straight. And this is what I currently do and have done. It’s better for my Parkie self to stay alive than to push it too hard.

That said, for a hiker, I would say that the most important bit of equipment other than water is whatever happens to or goes on our feet. Now, I carry blister pads. If I went any kind of distance in 2 days, I would have some kind of healing lotion for my paws as well. It might be weight, but anything that can soothe the feet is a good thing.

This brings us to footwear.

As a Parkinson’s guy with DYSTONIA in my left foot, I will never wear sneakers again, unless it’s a house to car to house trip. Even wandering around Wal-mart will produce a painful sensation on the mid-foot after a short distance (the three cuneiform bones, the cuboid bone, and the navicular bone). This discomfort feels like a nasty consistent annoyance that multiplies the 90° angle that my toes form. And yes, that's painful, too. Believe it or not, in just a short less than a tenth of a mile distance, this makes casual walking painful. Running is out for me, and fast walking, when I don't wear boots, can really hurt, too. Sometimes, I can walk through it if I'm feeling like pushing it, but most times, I can't - even if I try to push it. 
Given the choice of giving up only one of toe or mid-foot issues, I think could walk through the mid-foot, but the toe rearrangements hurt like hell. Thus, sneakers are a thing of the past, even if I had finally got snazzy running ones in 2014 (in the time dystonia was setting in / before PD was diagnosed). Now, it's all shoes that hold my toes in place.

I didn’t hike with sneakers that time. Instead, I had an old pair of ill-fitting Columbia boots, which got wet and created blisters. When I came back, I decided I would pay whatever it cost to never have blisters again. Instead, the guy from EMS put me into a pair of Keen Targhee boots for about half of the price I was willing to pay ($140 - I would have paid over $200 if they said these were blister-proof). He was awesome! I now have a second pair of similar boots from Keen, and I love them. I can see myself getting a new pair when my REI rebate comes in, too. 
By the way, there are regular Taghees and Targee 2s. When it comes to my experience and happiness with them, let’s just say they’ve kept me warm, dry, and safe while crossing streams and enduring Rocksylvania’s finest boulder piles and woodland floor brush. It would be nice to get paid by them to shill, but at this point, I'm just writing out of love for the product.

Additionally, I paid for better-fitting hiking socks, which may have been more expensive, but they provide cushion and avoid blisters. As any hiker will agree, comfort, lack of injuries, and ability to withstand the trail make all of the difference in the world. As a Parkinson’s guy, my body is generally an inferno, so I’m OK there, but my toes get cold (it’s the name of my game). Put simply, I’ve had numb toes sitting at home while just wearing shorts since the rest of me was toasty. I know; I’m an enigma and a conundrum. Thus, I like to have warmer socks on my toes. Not like my snazzy hospital socks, but you get the picture.

This week, I had to replace my old, dead slip on work shoes with nice ones for an interview. Recently, I’ve found that the old ones and even my water shoes / sandals were becoming more susceptible to dystonia pain, so just like with hiking, I found I needed a tight shoe to keep the 90° toe angle from getting in the way of annoyance. I can’t wear hiking boots to an interview, but I do wear them when I go anywhere that involves walking. That meant I needed to bring the CEO of my brain (my wife) along to pick out a good pair for all colors of pants. For work, this involved getting a shiny new pair of dark brown Dockers shoes from Kohl’s, which is one of my wife’s favorite things.

And for all that I wore them so far, I’m happy. The look is sharp and the dystonia is under control. Ideally, I like slip on shoes better, but to look professional instead of relaxed (slipping off my shoes to go stocking footed), I’ll put up with the discomfort by wearing thicker socks and counting my Benjamins before the paycheck arrives. I'm a big fan of money. I have a little, but I’d like more…

The same goes for hiking and walking. I don’t want to give up my movement or my freedom to explore, so I’ll keep looking to stay on my feet with poles, shoes / boots, and socks.

             I hope you do, too. There are many more open roads to explore!