For
all too many people, when they contemplate medicine, they seem to think that if
it works for one person, it will work for every person, and frankly, that just
isn’t true. The reality is that there are side effects and the “just doesn’t
quite do it for me” effects of some medicines, and when this happens, people
get bummed because they think that medicine and medical treatments help
everything.
"It
must be the doctor’s fault. He or she has no clue what he or she is doing."
Frustration
and anger set in, and it becomes time to take to the Internet to complain or go
to the lawyer’s office to sue for malpractice!
“You wasted my precious
time, and since I’m not getting better, it’s time to take it out on someone.”
After all, this is
America, Land of the Lawsuit, so just remember, we’re only one frivolous lawsuit away
from retiring. Besides, Powerball odds are too great (1 in 292 million) to cash
in on that $750 million grand prize someone else won. We need an easier
solution.
Nevertheless,
for those of us with ethics, this solution isn’t a solution. Besides, when we
work in the helping people with issues / concerns or medical professions world,
the training program demands that we help people understand this. At least I saw this a few years ago when I worked in the autism environment. As caregivers, we have
to help our patients and their families understand this. Thus, it becomes time to face the truth that
getting well for long-term concerns or even some health issues is a learning
game.
Often, we faced this same
thing with our diagnosis. We went through the Choose Your Own Adventure world
of ruling incorrect things out to get to the right things. What is the most likely thing that we are likely to be diagnosed with? What
is the actual thing we are enduring in this sickness / condition?
For many people, this
process goes like some variation of this:
Get our vital signs
taken. That’s easy. Go get bloodwork drawn. That’s a little invasive, but it’s
nothing we haven’t faced before. Go face down the big metal hoop a joop (should
we need a doctor to prod us after we have a lab tech poke us). That smarts. Go
get things inserted here or there. Tell me you love me before doing that.
Really! Go to the hospital for additional strange testing. Quit that stuff! You’re
hurting me. Spend time getting more tests. This cost is really adding up! Get
to the frickin’ point! I’m sick of waiting for an answer. I need to send you to
a specialist! I know we’ve been having you go to various labs and offices, but I’m
going to need you to go to Dr. X for Y in the hopes that they find Z because we
seem to be at the end of what my general training can logically deduce. You
know; I really never liked / used to like Algebra, but now I really hate this
crap! Can we get this stuff figured out? I only have so much sick leave /
patience / sanity left. Welcome to Dr. X’s office. We’ll need your co-pay of A
dollars. Does my insurance cover this? Yes for some / yes for most / yes for
all since you’ve second mortgaged your house to pay the deductible of the mega
bucks we’ve already asked for / no because it doesn’t feel like it / no because
your local legislators decided to let the state have the right not to / you don’t
have insurance, you poor fool.
Right now, I’m in the
phase of work and figure this out, so I’d like to say that I know a little
about this and the sane way to react to it. Thus, I essentially waited from
Friday to today to call back the doctor’s office to say, “The meds aren’t
working. Can I get some new ones (without scheduling an appointment to pay $40
to just get one that might)?”
Fortunately, the doctor
said yes, so I am now on Artane instead of Amantadine. For the better part of
the last 4-5 months, I had been actively taking Amantadine twice a day to treat
my tremors. I could have gone 3, but I already wasn’t sleeping much (up past
midnight most nights, and only sleeping 6-8 hours when I did), so 2 a day was
enough. I also had managed to concoct a rash called livedo reticularis, which
was kind of a raised skin thing that was part of the experience. However, it
started to itch, so that was annoying. Also, it got purplish and started to look
like spider webs, so that really sucked. While it wasn’t as bad as this picture (which is NOT ME), it was getting there. In the cold, it would get more spiderwebby (I
know I’m just making up words, but like Bobby Brown, that’s my prerogative). In
the warmth, it would go away. Anyway, I was none too impressed, so I made the
call.
Now, I’ll be heading to
the pharmacy on the way home for my 3 a day, 1 milligram medicine, which I hope
works better.
Drugs Dot Com lists the
following:
If you
experience any of the following serious side effects, stop taking
trihexyphenidyl and seek emergency medical attention or contact your doctor
immediately:
·
an allergic reaction
(difficulty breathing; closing of the throat; swelling of the lips, tongue, or
face; or hives);
·
fever;
·
fast or irregular
heartbeats;
·
anxiety,
hallucinations, confusion, agitation, hyperactivity, or loss of consciousness;
·
seizures;
·
eye pain; or
·
a rash.
Other, less serious side effects may be more
likely to occur. Continue to take trihexyphenidyl and talk to your doctor if
you experience
·
dryness of the
mouth;
·
large pupils or
blurred vision;
·
drowsiness or
dizziness;
·
difficulty urinating
or constipation;
·
nervousness or
anxiety;
·
upset stomach; or
·
decreased sweating.
This is not a complete list of side effects
and others may occur. Call your doctor for medical advice about side effects.
You may report side effects to FDA at 1-800-FDA-1088.
So yeah, here’s to a new experience with a new med. Hope
this one is a little better than the last or at the very least that my
hallucinations are at least set to the tune of Jimi Hendrix’s “Axis Bold as Love” CD. I know I'll at least enjoy them if they are.
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