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Showing posts with label Clif Shots. Show all posts
Showing posts with label Clif Shots. Show all posts

Saturday, February 17, 2018

Hiking Lessons for Mindsets and Feet: Having the Right Equipment is Everything (Especially for Mild Dystonia, Parkinson's, and Hyperhidrosis)!!




            In August of 2013, I had this grand dream. After getting off my chubby butt for the better part of 4 months, I felt that I could do a 5-6 day trek (with backpack) of the entire Standing Stone Trail (under 75 miles or so at the time if you include the distance from parking lot to the sign). I learned many things on the 20 miles of the journey I fought my way through over the 2 days I spent attempting the trail. Most of them were in line with, "Don't think; it can only hurt the ball club." Others were along the line of "rock hiking is slower and tougher than regular hiking."


1)      For me, there was no reward for starting and not finishing a task that isn’t accomplishable. Sure, I went out and experienced a part of it, while learning what not to do next time (a lot of what I did), but that's it. If you're doing something like I did, you know that we get our pictures and memories of what we saw, but if the goal is the finish line, we lost if we don't make it, and if we only go 1/3 of the way, we lost big. Thus, it’s important to have realistic goals and redefine success as pleasure and opening our minds to the flow of losing ourselves in the moment of productive accomplishment. Mihaly Csikszentmihalyi and his take on flow / optimal experience would be proud of us if we could find something we enjoy that much that we can make time vanish while creating / achieving (as long as it's not video game victories).



2)      “Getting to the top is optional, but getting down is mandatory (Ed Viesturs).” From a book that is entitled No Shortcuts to the Top, I should have been learning that a solid overnight back and forth would have been better to start (and at this point in my life, too), but I was electing to go all or nothing, so yeah. Not close and no cigar. I won’t say I’ve given up on over-nighters, but I’d just prefer to hike in and out to shelters instead. Now that I'm diagnosed with Parkinson's, life has changed BIG TIME. I’ve learned I’m more about the experience of seeing neat things than hauling a backpack day after day without a shower or without fresh cold water. As a Parkinson’s person with hyperhidrosis (I wrote about that HERE), I absorb and sweat out water quickly. Having almost 200 ounces of water on a sunny summer day doing 23 miles at Blue Marsh is about half of what I really want for something like that (I also want Clif Shots and gummy blocks - another of my favorite things I wrote about HERE and in its concluding part HERE. This is when I learned how they (and companions) could get me back from Arizona's Wave in 1 piece).



3)     On that note, I learned that there’s no reward for getting seriously injured or killed in some remote wilderness. Emergency rescues cost money. Hospital prices can be brutal, even with insurance (and sometimes, insurance won't cover it). The key is to train extensively and push ourselves just beyond our limits, not to 5 times our limits. Besides, we have people that love and need us. Remember, don't do stupid stuff or s**t.



4)     Always have an emergency way out. Companions for hikes are good, too. I went solo, which was pretty much my only option because I didn’t know anyone to go with. I had met and been influenced by one thru-hiker at the time (Lakeland, who is pretty much one of the premier long-distance elite hikers out there. At the time, he had accomplished the 5,500 Eastern Continental Trail during a year-long hike that also encompassed the Appalachian Trail), and the hike I was going to be on wasn’t going to be his type of hike. Hence, I did mine as a solo journey. Day 2, I woke up with blisters. Ten hours later, I was desperately trying to call my wife from an area of zero cell reception. I finally got in touch with her, but to put it in simplest terms, it wasn’t easy for her to find the unmarked dirt road that I was hiking to (and she was driving a Mini!). Let’s just say, at the end of the day, it’s nice to have someone who loves us enough to keep searching after driving 2 hours to rescue us from dehydration, exhaustion, and blisters. It's even nicer when said person doesn't say, "I told you so."





5)      Don’t carry more weight than you have to. I did. As the character Katz from Bill Bryson’s A Walk in the Woods learned, people will hate your guts if you throw excess weight into the forest. Food weight doesn’t go down fast enough to make it easier to ascend big mountains. Water weight also adds up for us hyperhidrosis types (he says while growling at the ultra-light types!). It doesn’t need to be compounded with lots of extra clothes. It also needs to be replenished quickly. Conserving water isn't smart for a hyperhidrosis hiker.



6)      Having the right equipment is everything! For instance, when the trek was over, I replaced my walking stick with Black Diamond trekking poles. And yes, like Oprah would say, “These are one of my favorite things.” As Lakeland said, they put us in four-wheel drive. It’s true; they do. They also help my Parkinson’s balance and my dystonia left foot as I ascend mountains and traverse boulder fields. Having them and my other essentials for all season (bear mace, Microspikes, and an ice ax) make a hell of a difference in being able to make it through. Someday, I'll be using mine as a "cane."




Prior to the trip, I had bought an REI tent, backpack, sleeping bag, ground cover, and other little supplies to take my Camelbak daypack (another one of my favorite things) and turn it into an overnight pack. I bought a ton of Cliff Bars (another of my favorite things) and dried food since I had no stove to cook with. And yes, they added up in weight. Knowing what I do about the need to stay hydrated on a pretty much dry trail, I'd rather see the trail over spread out days instead of a week straight. And this is what I currently do and have done. It’s better for my Parkie self to stay alive than to push it too hard.



That said, for a hiker, I would say that the most important bit of equipment other than water is whatever happens to or goes on our feet. Now, I carry blister pads. If I went any kind of distance in 2 days, I would have some kind of healing lotion for my paws as well. It might be weight, but anything that can soothe the feet is a good thing.
This brings us to footwear.



As a Parkinson’s guy with DYSTONIA in my left foot, I will never wear sneakers again, unless it’s a house to car to house trip. Even wandering around Wal-mart will produce a painful sensation on the mid-foot after a short distance (the three cuneiform bones, the cuboid bone, and the navicular bone). This discomfort feels like a nasty consistent annoyance that multiplies the 90° angle that my toes form. And yes, that's painful, too. Believe it or not, in just a short less than a tenth of a mile distance, this makes casual walking painful. Running is out for me, and fast walking, when I don't wear boots, can really hurt, too. Sometimes, I can walk through it if I'm feeling like pushing it, but most times, I can't - even if I try to push it. 
Given the choice of giving up only one of toe or mid-foot issues, I think could walk through the mid-foot, but the toe rearrangements hurt like hell. Thus, sneakers are a thing of the past, even if I had finally got snazzy running ones in 2014 (in the time dystonia was setting in / before PD was diagnosed). Now, it's all shoes that hold my toes in place.



I didn’t hike with sneakers that time. Instead, I had an old pair of ill-fitting Columbia boots, which got wet and created blisters. When I came back, I decided I would pay whatever it cost to never have blisters again. Instead, the guy from EMS put me into a pair of Keen Targhee boots for about half of the price I was willing to pay ($140 - I would have paid over $200 if they said these were blister-proof). He was awesome! I now have a second pair of similar boots from Keen, and I love them. I can see myself getting a new pair when my REI rebate comes in, too. 
By the way, there are regular Taghees and Targee 2s. When it comes to my experience and happiness with them, let’s just say they’ve kept me warm, dry, and safe while crossing streams and enduring Rocksylvania’s finest boulder piles and woodland floor brush. It would be nice to get paid by them to shill, but at this point, I'm just writing out of love for the product.




Additionally, I paid for better-fitting hiking socks, which may have been more expensive, but they provide cushion and avoid blisters. As any hiker will agree, comfort, lack of injuries, and ability to withstand the trail make all of the difference in the world. As a Parkinson’s guy, my body is generally an inferno, so I’m OK there, but my toes get cold (it’s the name of my game). Put simply, I’ve had numb toes sitting at home while just wearing shorts since the rest of me was toasty. I know; I’m an enigma and a conundrum. Thus, I like to have warmer socks on my toes. Not like my snazzy hospital socks, but you get the picture.



This week, I had to replace my old, dead slip on work shoes with nice ones for an interview. Recently, I’ve found that the old ones and even my water shoes / sandals were becoming more susceptible to dystonia pain, so just like with hiking, I found I needed a tight shoe to keep the 90° toe angle from getting in the way of annoyance. I can’t wear hiking boots to an interview, but I do wear them when I go anywhere that involves walking. That meant I needed to bring the CEO of my brain (my wife) along to pick out a good pair for all colors of pants. For work, this involved getting a shiny new pair of dark brown Dockers shoes from Kohl’s, which is one of my wife’s favorite things.




And for all that I wore them so far, I’m happy. The look is sharp and the dystonia is under control. Ideally, I like slip on shoes better, but to look professional instead of relaxed (slipping off my shoes to go stocking footed), I’ll put up with the discomfort by wearing thicker socks and counting my Benjamins before the paycheck arrives. I'm a big fan of money. I have a little, but I’d like more…
The same goes for hiking and walking. I don’t want to give up my movement or my freedom to explore, so I’ll keep looking to stay on my feet with poles, shoes / boots, and socks.



             I hope you do, too. There are many more open roads to explore!

Thursday, June 1, 2017

Hyperhidrosis and other vocabulary words related to Parkinson's disease summer hikes


            When my wife and I first bought our house (November 2009), I was not a fan of being cold at all. Now, thanks to the magic of Parkinson’s, I actually prefer it cold other than my weird Parkinson’s claw hands getting cold sensitive. Thus, I can save on heating bills (we keep our house at 65° in the winter, and I could go colder – neither of us are uncomfortable), and I can wear sweats and a long-sleeve t-shirt if necessary (though it's getting less necessary - even when cold outside). 


            I also don’t feel that uncomfortable while doing my annual Halloween weekend trek to Butler Knob Shelter on the Standing Stone Trail with Neil Brennen (pictured here and here). My 0° bag and a blanket over it to keep the wind from getting in the top allow me to sleep in relative comfort… i.e. I can wear shorts and a t-shirt, not sweat pants and a sweatshirt for sub 32° nights.


             Nevertheless, when I actually go hiking in the heat for any distance, this is a fair post-hike look for me:


            Part of the reason for the situation is called hyperhidrosis, and what it does is causes the body to sweat… a whole lot more. I used to wake up some mornings (in my nice comfy bed) with a puddle on my pillow and wonder why. Now I know the answer: Parkinson's (stress and Parkinson's or Parkinson's-related stress are the answer to all things). 

      TRUST ME; THERE ARE A LOT OF PARKINSON'S SYMPTOMS - HIDDEN AND VISIBLE - SEE HERE.

           Whenever I would hike, I would be the sweatiest, nasty dude around, sweaty enough to make people think I spent a week between showers on the long trails. Even sweaty dudes and dudettes would get grossed out by me! Who knew there was a name for this, but yes, there is. Thus, I have come to accept that my back is the Great Salt Lake, and that’s just how it is.



For this, when I go summer hiking, I now know I need to carry more water, much more than those ultra-light hikers on the AT and other trails (MAD PROPS to all of them for pushing through in the heat) have to do... no matter how much people scold me about the weight Yesterday was under 80°, and I could really feel it on the local Ephrata rails to trails, which was exposed in some areas (thank God for times spent between the trees). The resident goats looked at me with strange looks to question why I wasn't enjoying this more. I was, but it's just that I felt the heat on my neck and body... a lot.


Thinking about the woods and long distances means extra-preparedness now. For instance, I hiked 23 miles of hills at Blue Marsh (a local dammed-up lake) in June of 2014 when my PD was un-diagnosed and just symptoms (prior to left foot tremors - I.E. dystonia, but well after left hand tremors). On this trek, I went through 140 ounces or so of water, and I was rationing at the end until I could get to the car and hit a gas station for 2 32-ounce Gatorades). I would never do a walk like that with less than 250 ounces in the future. For those who can’t do math quickly, that’s about 16 pounds of quickly decreasing weight on my back. I personally wouldn’t gripe at carrying 300 ounces in the form of 2 100-ounce water bags and 5 frozen 20-ounce bottles.


            Better safe than sorry, even if it makes me a pack mule.



            That said, I’m getting back into motion, even with my claw foot, doing jaunts every day to shake the rust in my knees and lump in my gut (read: too much fat). Thus, I’ve got a long way to go, but I’m definitely getting me back on track. That's a good thing.


            Around the house, I’m thankful for high power fans and air conditioning. MAD PROPS to all of the HVAC guys and gals in the house! When I come back from a hike and sit down, my body goes all Niagara Falls. Yep, I’m a sexy pretty sight (and yes, that was the 8th grade me).


              Pretty or not, handsome as hell or not, I still made it, and I got up off my butt. Cheers to that!


            Alas, for whatever opinions I find myself not caring about, I go on, and I keep being me. Besides, I find my life about being comfortable through all of these heat-related conditions. Be it sleeping scantily clad or extending the underwear radius as soon as I get inside the door (and yes, I’m more Murray Goldberg than Brad Pitt – I get that, no matter what my wife and the neighbors think), this Parkinson’s stuff plays hell with my life (and sleep – as I mentioned the other day when I talked about pillow throwing, pillowcase stripping, rolling around, and scratching myself), but I’m not letting it define me. I’m still Dan, and Dan is a hiker – even if he has a bunch of hidden symptoms people can’t see or recognize as symptoms when they do see them.



            But that’s just my journey, and I’m glad you’re here to learn a little about it. So even if Parkinson’s isn’t your journey, be careful on the trails. Carry water… lots of it. If you see someone sweating, offer ‘em some of yours if they don’t have enough (trail magic). I’m also a big proponent of carrying Clif Shots, which saved my butt when a fellow hiker gave one to me on the way to the Wave on the Utah / Arizona border. 

      If you want to read my Wave hike and failure hike stories, they're here and here. 






            Remembering that heat now makes me sweat, and it’s for that reason that my wife and I talked of putting the World Petroglyph Tour (Great Gallery, Chaco Canyon, 9 Mile Canyon, Butler Wash, and Canyon of the Ancients) off until Thanksgiving time frame. No point wasting away in extreme heat while exposed in a desert canyon in Utah in August. That just sounds like a recipe for disaster.


            Hike your own hike, they say, and this is ours (my fellow PD people who choose to be active. So enjoy yours, whatever it is, and thanks for getting to know a little about ours.