Sunday, May 5, 2019
The month of April is officially known as Parkinson's Awareness Month. April 11th, this year, was officially World Parkinson's Day. Unlike for birthdays and Christmas, it would seem, we don't get presents for our day. If we do, mine are still waiting to be delivered on a 1980's style 6-8 weeks for delivery deal for the turn around in shipping and handling.
Nevertheless, we do get tulips as our official flower. More specifically, we get red tulips with a fringe of white, but since I have a month where nobody baked me a cake, much less gave me a gift card, I'm taking all colors for all of us who have Parkinson's or know someone that does.
That means that you win, too!
That said, it's not like I didn't get anything "extra" with PD. Comorbid conditions abound as Parkinson's is the gift that keeps giving. Since I've had it (symptoms 2011 - preliminary diagnosis September 27, 2016 - actual diagnosis November 1, 2016), I got way more than the standard tremors.
1) A whole lot of learning (25 of those things are HERE).
3) Lyme disease, though they just found that while looking for Parkinson's - it's the Great Imitator. This was my "biggest, bestest" free toaster for playing.
4) REM sleep behavior disorder
5) A 2-part battle with pneumonia HERE and HERE and concerns of aspiration pneumonia like swallow studies and shuffling off this mortal coil.
6) Bradykinesia concerns
7) Dystonia starting to take hold
8) Anxiety and mental overload concerns
And my family and friends got them, too! Bonanza!
So yeah... I've learned other things, too, but I'd rather not focus on that. I'd rather give you all tulips of empathy, support, and good vibes to brighten your day as you do mine when you read my writings or offer me support.
If you like this article, please like my Facebook page to be updated with more essays as they post. I write about Parkinson's and the things that keep me happy, thus extending my quality of life, somewhere in stage 2.
These photos are from Longwood Gardens, which is outside Philadelphia. I took them 2 weeks ago, when my wife and I went to visit, as we do regularly (we get the year passes). Enjoy them and remember that Parkinson's is more than 30 days a year. Never stop educating and advocating!
For the better part of the last 5 months, I've been putting a 2,000 song mix together for my mp3 player. Adding, subtracting, organizing, and compiling into a flowing work, I'm officially done with it, but I still have to go through and type out the last 500, so here's the 3rd 500. Yes, I had to put this on 4 playlists (as my mp3 player will only do 999 song lists - who knew?). I've chosen this length for that and since each of the playlists begins with a version of The Pixies' "Where Is My Mind."
In compiling the rules for this, I've decided that an artist can only be in 1% of the songs, though if said artist appears solo instead of with a band or said person is featured on another person's song, that's different. For instance Ben Folds and Ben Folds Five and Ben Folds with Nick Hornby are 3 different entities.
Now, the question is whether to add an additional 500 for the end of the year...